When I was pregnant, I scoured the Internet for videos of children with spina bifida. I wanted to see what everyday life was like. I wanted to see families out and about and doing the typical things I was so afraid we would lose in our new normal. I hope my little collection of family videos (in all their poorly shot glory) can help folks get a picture of what life is like for us– the regular and the not-so-regular. What I’m trying to say is that spina bifida certainly affects how this kid gets around but it hasn’t stopped him (or our family) from fun outings, hippy-dippy farmers market visits, and lots of play time at home.
Check it out, ooh and aah, soak in the cuteness, notice his mad wheelchair skills, do a happy dance, take a nap. <— That last one is what I’ll be doing in my dream scenario.
Simeon at 2-years-old
- Getting around:
- At home: Army Crawling /Bumbo wheelchair / Wheelchair / Carried so I can snuggle him
- Out and about: Wheelchair/stroller
- Eating all the things (or not):
- Simeon has decided that vegetables are gross even when I cook them and season them and make them magical. He will always eat fruit (thank heaven). He’s also in a don’t-cut-my-food-because-I’m-an-adult-now phase. FYI: he’s NOT an adult. He’s just a bossy toddler.
- Slowly but surely. Speech therapy has done wonders but Simeon is still quite far behind for his age. He doesn’t have issues saying “no” though, so that’s something. I should do a “talking” video soon so you can see his progress– in my spare time, ya know? <—That’s a joke because I don’t have any and if I did I would use it to watch Gilmore Girls on Netflix.
- Anything and everything Mr. Rogers has ever done.
- “The Wheels On the Bus”
- Pretending to be hurt so he can get hugs.
- Calling me “dad” even though he is completely capable of saying “mom.” <—jerk
- Drinking his juice out of a coffee mug because he’s sophisticated (and because I’m choosing my battles so who cares if he gets water and juice all over himself…).
- Testing his parents. Mainly by hitting me and then waiting to see what I’ll do about it. We’re getting ornery over here. Parenting is hard and I’m pretty sure that I’m not as in charge as I think I am.
- Doing sweet wheelchair spins.
- Playing with cars.
- Making EVERYTHING into a “drum.” Rat-a-tat-tat.
- Saying prayers and crossing himself (like a good old Orthodox kid!)
And now for the video proof. Happy Friday!
Music is “Fisher of Men” by M. Ward