I appreciate the sentiment. But I do not agree.
I’ll tell you what I think–
My son is living the life he was given. He does not fight.
Although he faces adversity, he has no adversary. He knows no other body than the one he is in. He does not fight against spina bifida– he thrives within the reality of it. He is not a hero. Neither am I.
When he is grown and old enough to have adversaries, they will not reside within his body. Just as yours and mine do, they will reside in his soul– anger, despair, jealousy, unkindness, despondency, small-mindedness, laziness. These are worth fighting.
I know what people mean when they say he is a superhero. They mean he will overcome. They mean he will survive. They mean our family will be okay. But somehow, to say this little boy is a hero places one more burden on his shoulders– one more presumption based solely his body.
I do not think my son is a hero for living his life. I do not think my son is a fighter for smiling like other children do– even if it is from a hospital bed.
And each day, as Simeon grows, he will make choices. Some days he will choose to be courageous. Some days he will choose to despair. But he will have to decide who he is and what he is made of.