|Why is everyone so interested in my brains? Could this be the beginning of the Zombie Apocalypse?|
The surgeon generally doesn’t know why the shunt is failing until he gets in there and checks it all out. It could be a clog, it could be a kink in the tubing, it could be a valve issue, or any number of other things I don’t quite understand. So, bright and early Thursday morning we took Simeon into the OR for surgery number seven. Jeez-louise!
|Simeon is a big fan of Daddy|
Once he took a look inside, our neurosurgeon saw that the catheter, which sits inside the ventricle, was clogged. Fluid that would normally move through this catheter, to the valve, and down the tubing into Sim’s belly was not able to get out. This explains Simeon’s bulging soft spot and maybe his crankiness the past few days (that, or I just happen to have a fussy tyrant on my hands). During the surgery there was a bit of bleeding when they removed the catheter. This means the catheter was sticking to the wall of the ventricle (yikes! brains!) and when the removed it the tissue tore causing a bleed. We got a CT scan to check for increased bleeding but only saw a minimal amount so the surgeon isn’t too worried. We planned on being here until Monday anyway so they are observing Simeon for signs of complications. So far he is doing well!
- Fussy babies who yell at you for changing their diaper and make you feel guilty for keeping them clean. Well, excuse me for trying to ensure that you don’t smell like a foot all the time, Mr. Crabby-pants!
- Soft spots that bulge and throb like something out of an alien movie.
- Swelling around his shunt. “Looks like they cut an avocado in half and stuck it under his skin!” said our nurse. Too true.
- Watching Simeon get an IV. It scares him and makes him so sad. I can’t stand it.
- Struggling to find a bottle nipple that Simeon can suck his thickened feeds out of. He’s like Goldilocks– this one’s too hard, this one’s too easy, but where is the “just right” one? The quest for the perfect nipple continues!
|Simeon and his Great Grandmother. The fabulous Frances!|
|Simeon’s first trach change! Greg and I have since learned to do this ourselves. And it looks way less impressive and important when we do it!|
|If you are lost in the snow, Simeon will find you and revive you with milk from his rescue flask. He is currently being trained to fetch, roll over, and bring in the newspaper. Isn’t the one on the right the cutest little worker dog you’ve ever seen?|
Eww! Fresh Trach?
|Trach is the catch of the day! Fresh, never frozen.|
|Whenever we switch rooms, we have to bring miles of milk along with us.|