Shortly after my last post our home was invaded. And, while a wish I could say this invasion was of the British persuasion (I love a little Penny Lane now and then), it was really more of a nasty bug (not a Beatle) that took over our home– more specifically, our baby.
Simeon came down with RSV.
What is RSV you ask? It stands for Respiratory Syncytial Virus. But if you ask me, it could stand for any of the following:
Really Stupid Virus
Remember Sleeping? Virus
Revolting Secretions Virus
Rock-me-with Steroids Virus
Racous (wheezing) Sounds Virus
Basically, RSV is a mild cold in adults but an angry wheezing cough festival in babies. For a child with a trach, RSV can be very dangerous. Because of this, Simeon receives a monthly injection of antibodies to help prevent him from getting RSV.
For a kid his size, the shot costs around $2,200 a month– and (this is the best part) it is not guaranteed to work.
I have no idea how Simeon could have possibly gotten sick (sarcasm). How did this happen? Was it:
a) From nibbling the fingers of any person not fast enough to pull away (be they clean, dirty, homeless, or moaning with leprosy)?
b) From being kissed by his mother who had a 1st grader cough into her mouth during library time?
c) From breathing in germs during his recent doctor appointment?
d) From snuggling his Dad who had a runny nose?
See what I mean? So many possibilities!
Truthfully I don’t think we could have stayed out of the hospital without the help of our fabulous nurses. So, nurses of the Smith household, I salute you! You too, pediatrician! Thank you for the steroids and for being so easy to reach on the weekends.
Keep Greg and I in your prayers. Send us your good vibes, juju, and energy. Even though Sim feels much better, the coughing can last a few weeks and his oxygen is still low during sleep…
–which means he alarms/coughs all night and needs his trach cleared,
–which means Greg and I are getting up about 7 – 15 times a night,
–which means we aren’t sleeping much,
–which means I am a pathetic zombie-librarian-woman-with-crazy-hair-and-a-bad-attitude.
In conclusion I would like to say: RSV– you can go suck a lemon.