Last week we brought home Simeon’s first pair of leg braces. They are fun and cute and a real jerk to put on, but I think they’re worth it. I was on the fence about bracing Simeon– seems like a lot of suiting-up just to stand in one place. But our therapists encouraged us to try it and I’m glad we did.
Fast Facts About Our New Braces:
|Looks like Simeon has been raptured…|
- Simeon needed HKAFOs (Hip Knee Ankle Foot Orthodics) which means that his bracing starts at the waist and goes all the way down to his itty bitty feet.
- Putting those suckers on is a chore— and by “chore” I mean something that makes you curse that day in kindergarten when you learned to use Velcro.
- Standing can help strengthen your core, aid in trunk control, help bowel and bladder issues, and may increase bone density. And who doesn’t like that stuff?
- Braces that aren’t being worn are creepy. Looks like there’s an invisible kid wearing leg braces who’s watching me all the time. *Shiver*
- Simeon thinks his leg braces are a big fat joke. I’m pretty sure he scream-laughed for a full 5 minutes the first time we put them on. He’s probably thinking something along the lines of, “What the heck you guys? I’m a baby— we both know I shouldn’t be up this high. I’m getting away with murder!!“
- He wears the braces for about 15 minutes a day. We’re building up his tolerance so that eventually he wears them for longer periods of time.
- Simeon likes to stand and play at the table but you know he’s sick of it when he does a big “I-give-up-on-life” back bend towards certain death. Can’t leave that kid alone for one second.
- With braces, Sim is the ideal height for hugging. And I love it.
Now, before you get all “OMG it’s a miracle! Simeon has taken up his pallet and walked!” let me tell you the purpose of these braces: to stand with assistance. We won’t be running marathons, playing pro-soccer, or jumping rope but we will be using them as part of his therapy. With a lot of work, Sim may someday be able to do go short distance around the house using a walker but that’s a long way off (if it happens at all).
So, we may not be having a Forrest Gump moment (not yet) but I still think this new trick is something to stand up and shout about. What do you think?