Yesterday morning came too soon. After a busy evening at the hospital, followed by a three AM feeding, I was hoping for four hours of uninterrupted sleep when I awoke to the sound of Simeon fussing around. It was five o’clock in the morning.
|Observe the sleeping Daddy. After a long day of work and an evening grazing in the hospital kitchen, waking this beast is nearly impossible…|
“Greg, wake up…” I rasped into the gloom. No response. “Greg!” this time it came with a swift elbow to the ribs. Someone had promised to take over the morning feeding and I would not be doing it for him. Come hell or high water I was going back to sleep and ain’t no baby gonna stop me! One more nudge should do it, “Greg! Get up.” Finally, awake and confused Greg huffed, “What time is it?” And through my groggy, dreamlike haze I answered:
|This post doesn’t have enough about me in it… boring.|
So, I feel I should say “thank you”to all those who are helping to keep me sane. As Greg and I sink deeper and deeper into crazy town I appreciate little escapes now and then. My distractions come in surprising packages and I live for them. Shocking as it may be, talking about my son’s health all day, everyday, can get rather tiresome. My interests expand beyond shunts, trachs, and suction equipment but sometimes I need reminding.
Ta da! Lots to be thankful for and the list could be so much longer but Simeon is back from his MRI and demanding food so I must go.
|Attend unto my cry, for I am very hungry!|
One quick update: Simeon passed his swallow study so he will not be needing a feeding tube at this time. This was the big win of the week and Greg and I are over-the-moon proud of the little bug.
His pneumonia is on the mend so we should be discharged soon and we will go home with oxygen to use during the night. This will help keep his oxygen stable if he has any central apnea spells. Maybe– just maybe– we’ll be home soon. Thank you for your thoughts and prayers.
It’s Cheese O’clock and all’s well.
|Mirror mirror on the wall, who’s the most kissable of them all?|
|Slept right through his X-ray|