Clinic Day comes every three months. It’s where plans are made, questions are answered, equipment is ordered, and bathroom habits are examined. That’s right: doo doo talk– lots of it. Spina bifida clinic is not for the faint of heart.
Eventually, we’ll go to clinic only once a year but early on it’s important to keep a close eye on kids like Sim.
News from clinic:
- Simeon’s kidneys are healthy! And because his bladder is still leaking enough to empty, there’s no need to start cathing yet. Thank heavens.
- Simeon will be getting HKAFO braces () in order to begin therapeutic standing. Standing can improve trunk strength and may decrease constipation in kids like Sim.
- All is well in shunt world!
- We’ve made an appointment to have Sim evaluated for his very own wheelchair.
It was a big morning. I look forward to clinic days with a combination of excitement and dread. We see such an interesting group of kindred spirits and it’s an invaluable resource but there’s always a chance that they’ll find something wrong– always the possibility of bad news. Today we have a lot to celebrate and I’m thankful.
Since both of us took the day off, Greg and I decided to take advantage of the day. We took Simeon to a post-clinic lunch at Katzinger’s Deli and stopped at Kitties for some mind-blowing hand crafted cakes. Pastrami, pickles, and chocolate… all is right with the world.
You may notice a new addition in the photos above. Looks like Sim will be on a roll (heheh… get it?) sooner than expected. I’ll fill you in soon!