Ha ha, suckers. Me too.
Here’s the deal: Sim got a cold and when Sim gets a cold, sleeping in his cap is too hard. So we rescheduled. Then we rescheduled again because, even after two weeks, Sim is still having a tough time breathing with his cap during sleep. And I’m going a little nuts trying to figure out why.
|I wear pearls for all my emotional meltdowns.|
So, the question is, why?! Why isn’t Sim sleeping with his cap on?
Is it because he…
a) Is still in the midst of a respiratory infection?
b) Has developed a springtime allergy because he thinks it will match his glasses and add to his general geek-chic persona?
c) Loves his trach like a pet goldfish and wants to keep it forever (even though we all know that little bugger is going to die eventually, right)?
d) Enjoys giving me a wicked case of the Victorian-lady vapors by yanking his trach out without warning at dinner parties and in dirty public restrooms (can one order smelling salts on Amazon? Why yes one can…)?
e) Is a fiendish and coniving toddler motivated by barbarous impulses?
All of these are valid possibilities. I just wish I knew the right answer.
For now, this sleep study is set for April 23rd and, even though I kid about this stuff, the truth is that I’m really disappointed and anxious. I thought he’d be doing so much better by now and it worries me. I guess I got my hopes up about this whole bye-bye trach mission. I know that decannulation will happen eventually, it’s just that I want it to happen now or tomorrow.
Prayers, happy thoughts, and (good-good-good) good vibrarions (??giving me the excitations??) are appreciated between now and April 23rd. Until then, you can find me staring at my child while he sleeps like I’m a creepy-creeper from a horror movie.
|Or like I’m a Milford Man.|