If a Simeon flavored lollipop existed, I would be all over that. If there was a Simeon infused cookie I would invest in a case or two. Heck, if there was a chunky Simeon soup I would hit that up on a cold winter night. I guess what I’m trying to say is that there is a fine line between wanting to snuggle your baby and wanting to eat your baby– he just looks so darn delicious. I heard someone say that moms want to make out with their kids. To that I say, “Eww.” But also, “Yes. We kinda do.”
|Anyone else wanna take a bite of this? Will the cuteness ever end!?|
So it’s a good thing I’m coo-coo for this kid because last week we reached new, wonderful, and stressful territory– Simeon now has a Passy-Muir valve for his trach. Hallelujah! The Passy-Muir valve is this fabulous device for trach folk. It was invented by David Muir, a patient with muscular dystrophy who hated that he couldn’t speak after he got his trach. He, like Simeon, had trouble with Ursula the Sea Witch so he invented this nifty device that allows tracheotomy patients to vocalize. David Muir is kind of a rock star. Seriously. The valve is genius– it lets patients breath in through the trach but out through their nose and mouth. This helps with swallowing, smell, and lets patients speak. Simeon can make sounds again! Yippee!
Actually, sometimes I forget that other babies are out there cooing and babbling and filling the world with ear-piercing cries. Simeon is so good at communicating his needs that I forget most kids do this with their voice. I can tell if Sim is hungry, laughing, playing, or sleeping based solely on the speed and volume of the noise coming from his trach.
The other day we stopped into a shop down the street and the woman behind the counter looked at Simeon with concern and said “Oh no. What’s that noise?” I explained the trach and how it makes his breathing sound very snotty, like he has a nasty cold all the time. She looked relieved but I felt strange. For now, that snotty sound is Simeon’s voice. It let’s me know what he needs and when he needs it but, my goodness– it isn’t exactly ideal, is it? So we’ll keep working on this valve thing. The little genius will figure it out eventually.
In other news, I got the video mode working on my camera so I thought I would share some movies of our 4-month-old little man. He’s getting so big! I give you a valve sneak peak at the end– not terribly pleasant, but at least he has a cute cry. Right?
Music is All I Want is You by Barry Louis Polisar