M.E. // Hi folks! I’m Mary Evelyn– school librarian, old-fashioned cocktail drinker, song maker-upper, blogger, wife, mama, Orthodox Christian. This is far from my childhood dream of becoming a clown/ballerina, which sounds scary but would probably have been pretty great for unisex birthday parties. I love my handsome husband, my spunky toddler, and my little space here in Columbus, Ohio. Also, Arrested Development. I love that too.
In 2012 I found out that I was expecting a baby boy. I also learned that he would be born with a birth defect called Spina Bifida– a neural tube defect in which the spinal column does not close completely. Since then I’m just learning– what it means to be a mother, what it means to live with a disability, and how being honest and vulnerable opens us up to so much good.
The Blog // I started this blog back in 2012. I write about living our new normal– the good, the bad, and the laughable. I want this to be a place where I can share honestly. We laugh a lot around here. I like to think all matters are laughing matters, if you want them to be.
I chose the name What Do You Do, Dear? based on one of my favorite childhood books by Sesyle Joslin. It’s all about surprises, expecting the unexpected, and staying poised in ridiculous situations (like when a cowboy tries to kidnap you from the library! Egads!). Also, it’s illustrated by Maurice Sendak who is kind of a genius.
Whether you’re living an adventurous “normal” or an ever changing “new normal” come on in– we have more in common than you think.
//Watch videos HERE\\
When a little girl felt sorry for my son
On having another baby
Standing is stupid
Home is where your wheelchair is
How a father taught me to be a mother
Dreams of what is not
My fight with forever
On talking to kids about disability and Voldemort
A special kind of person
Brown baby dolls and my search for diversity in the suburbs
Making room for elephants
Addendum for Simeon
//To make you laugh (at my expense)\\
Diagnosis: Severe Hottie
The Internet (people read it)
Here’s my dumbest fear– what’s yours?
I laugh at my kid (and you can too)
I’m feeling better (just like I trolled you I would)
That time I cancelled Christmas
A hard pill to swallow
Taylor Swift is bananas (and I keep coming back for more)
Old Kutcher Face
Just when I think I’ve lost my sense of humor