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Learning when (NOT) to talk to strangers about my child’s disability

At five-weeks-old, my son was admitted to the hospital for some testing. He was fussy and I was exhausted, in that glassy-eyed new-mom sort of way, but I remember the day was sunny and we had high hopes for a short stay. I checked us in, signed our paperwork, and watched as the receptionist cooed… 

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20 weeks: halfway there

  Yesterday we had our 20 week ultrasound. Everything looked great. Baby girl is rocking and rolling in there, getting bigger and stronger, just like her brother did. I expected to be more nervous for the appointment than I actually was. This is the same scan that found Simeon’s spina bifida over two years ago… 

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Friday (online) fun day

Hallelujah! We DID it! It’s Friday, you guys! I don’t know about you but over here in Smithville this week felt long. I can’t put my finger on why exactly, I just know that I’ve been looking forward to this day with the same desperate anticipation that my 13-year-old self felt while waiting for the… 

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Oh, the pets you can get (but probably shouldn’t)

I come from a long line of bad pet owners. Growing up, my siblings and I regularly tortured our parents with demands for various species of fish, fowl, and beast. We made promises to love and care for each sought after creature. We wept, gnashed our teeth, and slammed doors. For us, suffering the injustice… 

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Talking to kids about disability (and Voldemort)

This piece originally appeared as a guest post on And Babies Don’t Keep back in November 2013 but it came to mind recently when Simeon and I were out shopping. A little girl (about 7-years-old) wandered over and asked why Simeon was “in that wheelchair.” She was polite and curious but before I could respond, her… 

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What will my daughter look like?: An answer in theories and doodles

Waiting to meet your baby is exasperating. So much anticipation. So much speculation. So much heartburn. There’s just a lot to think about. Specifically, Greg and I have spent quite a bit of time wondering what this new baby will look like. Will she be brown eyed or blue? Straight haired or curly? Blond or… 

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On learning my daughter can move her legs

My daughter can move her legs. I figured she would. Why wouldn’t she? Lightning doesn’t often strike the same place twice. And by lightning, I mean spina bifida. And by place, I guess I mean… me. I knew she would move her legs. Still, I was not prepared. For the triumphant force of it. For… 

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Greg is flying solo most nights this week. Apparently, teaching + growing a girl human + getting Simeon to all his therapy/doctor/preschool appointments = me falling asleep before dinner and being the least fun mom ever. I'm working on it...

Back to the library

  School started on Monday and things have been a bit quiet around here while I get into the swing of things. Each year, it takes some time for me to remember how I did this working-mom gig. It takes a while for me to remember the answers to all my questions. Seriously– like, how do I find time… 

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His legs are getting pretty long for this thing. Still fits alright everywhere else. We may try to extend that foot-board in the next few months!

Why you need a BUMBO wheelchair

Many of you have seen photos and videos of Simeon tooling around our house in his swanky blue BUMBO-on-wheels. Call it what you want–a BUMBO wheelchair, a baby wheelchair, a souped-up-Sim-speedster–when he puts the pedal to the metal (or the rubber to the road), that thing can really fly. I’ve received a lot of questions… 

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Gender reveal (with a little help from Mother Goose)

Stop the presses. It’s time for a good old-fashioned gender reveal. This baby is made of … (or, in the words of our doctor, we got “the hamburger– not the hotdog.”) Woa. This is going to be an adventure, you guys. We’ve never had a girl baby before. I don’t even know how this works…. 

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Home Makeover: Gray and Green Exterior

Last summer, when our realtor emailed with photos of a “great home” with “loads of potential,” I laughed out loud. The place was a hot mess. Such a mess, in fact, that when I saw the address I figured it was a mistake. This eye-sore was apparently in a nice neighborhood full of tidy houses… 

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