Two-years-old: a video and an update

I’ve noticed that there are a lot of new visitors to this little space lately and many of you haven’t seen Simeon in action. A video update is in order, don’t you think? When I was pregnant, I scoured the Internet for videos of children with spina bifida. I wanted to see what everyday life… 

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That time the Internet saved my son’s life

After my son’s diagnosis, the Internet and I got very cozy. A large part of my pregnancy was spent surfing around in search of stories like ours until, eventually, it became a daily ritual. I read blogs, I joined a Facebook group and a Baby Center Community board, I sent emails to a few parents, I even started writing our… 

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Journals of shame

My best friend is having a yard sale this weekend and I would kill-a-man to be there and scoop up some of her goods. Since we live on opposite ends of the country (and I don’t have time to fully prep and carry out a homicide, nor am I sure how killing a man would… 

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Big boy bed

I’ve caught the nesting bug. I knew I would catch it eventually. To be honest, my plan was to hold off on starting the baby-prep process while waiting for the bug to bite because (when you get down to it) “nesting” is just a nice way of saying “housework.” Kind of like how “I’m doing… 

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What does spina bifida look like?

Welcome to October. The month of awareness. The month in which you must exhaust yourself by becoming aware of just about everything. No– I’m serious. Call it poor planning or call it coincidence but there are a ton of organizations vying for your attention this month. According to a random and unverified calendar, which I… 

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Letting go of guilty: on folic acid and spina bifida

I took it from the moment we started trying… I’d been taking it for years… I wasn’t deficient… I couldn’t be… There’s just no way. When your child has spina bifida, you meet plenty of fellow travelers. If you spend time on message boards, if you connect with enough mothers, if you listen in and… 

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Our little girl has a name

And I figured I ought to share it since I keep accidentally typing it every time I refer to the little lady.  I’ve never been much good at secrets anyway… We’re naming her Frances Louise after our maternal Grandmothers. Greg’s”Louise” is a whole lot of sweet and my “Frances” is a big dash of sassy… 

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Go Dad Go: Greg’s First Marathon

Last May, Greg decided he was going to run the Air Force Marathon in Dayton OH and I was all, “Seriously?” I know marathons are a like, a thing. I know regular people do them all the time but something about running or walking or (if the runner were me) limping/whining for 26.2 miles sounds… 

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Learning when (NOT) to talk to strangers about my child’s disability

At five-weeks-old, my son was admitted to the hospital for some testing. He was fussy and I was exhausted, in that glassy-eyed new-mom sort of way, but I remember the day was sunny and we had high hopes for a short stay. I checked us in, signed our paperwork, and watched as the receptionist cooed… 

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20 weeks: halfway there

  Yesterday we had our 20 week ultrasound. Everything looked great. Baby girl is rocking and rolling in there, getting bigger and stronger, just like her brother did. I expected to be more nervous for the appointment than I actually was. This is the same scan that found Simeon’s spina bifida over two years ago… 

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Friday (online) fun day

Hallelujah! We DID it! It’s Friday, you guys! I don’t know about you but over here in Smithville this week felt long. I can’t put my finger on why exactly, I just know that I’ve been looking forward to this day with the same desperate anticipation that my 13-year-old self felt while waiting for the… 

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