Wheelchair Costume: won’t you be my neighbor?

I did it you guys! After a bit of scheming, one poorly sketched rough draft (you’ve seen my crap-tastic drawing skills first hand), and tons of inspiration from my fellow SB mama, I made our first wheelchair Halloween costume. Because the show is Simeon’s absolute favorite, we decided to go with a “Mr. Rogers Neighborhood”… 

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VBAC or C-Section: on exit strategies and planning the unplannable

When I was pregnant with Simeon, I had all kinds of wild plans for his birth. I read up on labor techniques. I researched Lamaze and hypnobirthing (<—yes, that’s a real thing). I poured over lists of local doulas. I was not messing around. About a year earlier I had seen The Business of Being… 

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GladHatter Giveaway!

You like free stuff, right? You like snuggly stuff, right? You like stuff that keeps your kids’ noggins warm and makes them look so darling you want to squeeze the stuffing out of them, right? Perfect. How about a Giveaway? Two years ago, I discovered that my dear friend Meg had been hiding something from… 

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Two-years-old: a video and an update

I’ve noticed that there are a lot of new visitors to this little space lately and many of you haven’t seen Simeon in action. A video update is in order, don’t you think? When I was pregnant, I scoured the Internet for videos of children with spina bifida. I wanted to see what everyday life… 

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That time the Internet saved my son’s life

After my son’s diagnosis, the Internet and I got very cozy. A large part of my pregnancy was spent surfing around in search of stories like ours until, eventually, it became a daily ritual. I read blogs, I joined a Facebook group and a Baby Center Community board, I sent emails to a few parents, I even started writing our… 

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Journals of shame

My best friend is having a yard sale this weekend and I would kill-a-man to be there and scoop up some of her goods. Since we live on opposite ends of the country (and I don’t have time to fully prep and carry out a homicide, nor am I sure how killing a man would… 

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Big boy bed

I’ve caught the nesting bug. I knew I would catch it eventually. To be honest, my plan was to hold off on starting the baby-prep process while waiting for the bug to bite because (when you get down to it) “nesting” is just a nice way of saying “housework.” Kind of like how “I’m doing… 

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What does spina bifida look like?

Welcome to October. The month of awareness. The month in which you must exhaust yourself by becoming aware of just about everything. No– I’m serious. Call it poor planning or call it coincidence but there are a ton of organizations vying for your attention this month. According to a random and unverified calendar, which I… 

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Letting go of guilty: on folic acid and spina bifida

I took it from the moment we started trying… I’d been taking it for years… I wasn’t deficient… I couldn’t be… There’s just no way. When your child has spina bifida, you meet plenty of fellow travelers. If you spend time on message boards, if you connect with enough mothers, if you listen in and… 

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Our little girl has a name

And I figured I ought to share it since I keep accidentally typing it every time I refer to the little lady.  I’ve never been much good at secrets anyway… We’re naming her Frances Louise after our maternal Grandmothers. Greg’s”Louise” is a whole lot of sweet and my “Frances” is a big dash of sassy… 

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Go Dad Go: Greg’s First Marathon

Last May, Greg decided he was going to run the Air Force Marathon in Dayton OH and I was all, “Seriously?” I know marathons are a like, a thing. I know regular people do them all the time but something about running or walking or (if the runner were me) limping/whining for 26.2 miles sounds… 

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